Web and Local Resources
General Organizations |
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BEACH Center on Disability | www.beachcenter.org |
Dissemination Center for Children with Disabilities | www.Nichcy.org |
National Council on Disability | www.ncd.gov |
National Easter Seals Society | www.easterseals.com |
National Organization for Rare Disorders | www.rarediseases.org |
National Organization on Disability | www.nod.org |
PACER CENTER, Champions for children with disabilities | www.pacer.org |
Parents helping Parents | www.php.com |
Special Olympics International | www.specialolympics.org |
Very Special Arts | www.vsarts.org |
Specific Disabilities |
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American Association on Intellectual and Developmental Disabilities | www.aaidd.org |
American Speech-Language-Hearing Association | www.asha.org |
Autism Society of America | www.autism-society.org |
Brain Injury Association | www.biausa.org |
CHADD Children and Adults with ADD | www.chadd.org |
Council for Exceptional Children | www.cec.sped.org |
Council for Learning Disabilities | www.cldinternational.org |
Department of Health and Human Services | www.hhs.gov |
Hydrocephalus Association | www.hydroassoc.org |
International Dyslexia Association | www.interdys.org |
Learning Disabilities Association of America | ldaamerica.org/ |
National Alliance for the Mentally Ill | www.nami.org |
National Center for Learning Disabilities | www.ncld.org |
National Center on Stuttering | www.stuttering.com |
National Down Syndrome Society | www.ndss.org |
The Epilepsy Foundation of America | www.epilepsyfoundation.org |
United Cerebral Palsy Associations, Inc. | www.ucp.org |
The Epilepsy Foundation of America | www.epilepsyfoundation.org |
Educational Resources |
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Assistive Technology | www.closingthegap.com |
Connecticut State Department of Education | www.sde.ct.gov/sde/ |
Inclusion Press Homepage | www.inclusion.com |
National Association of State Boards of Education (NASBE) | www.nasbe.org |
National Parent Network on Disabilities (NPND) | www.npnd.org |
Rehabilitation Engineering and Assistive Technology Society of America | www.resna.org |
US Department of Education | www.ed.gov |
LOCAL SUPPORT GROUPS
School-based groups, such as the PTA and Special Education Parent Reps, cannot provide the disability-specific support we often need. Following is a list of local support groups, recommended by PTA Council SpedParents Committee members.
Autism |
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CT Autism Spectrum Resource Center | www.ct-asrc.org |
CT FEAT (Families for Effective Treatment of Autism) | www.ctfeat.org |
Autism Society of Connecticut | www.autismsocietyofct.org |
Learning Disabilities |
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SmartKids with Learning Disabilities | www.smartkidswithld.org |
Recording for the Blind & Dyslexic | www.rfbd.org |
CACLD (CT Association for Children with Learning Disabilities) | www.cacld.org |
LDACT (Learning Disabilities Association of Connecticut) | ldaamerica.org/ |
Down Syndrome |
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CT Down Syndrome Congress | www.ctdownsyndrome.org |
Tourette Syndrome |
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CT Tourette Syndrome Association | www.tsact.org |
Hearing Impairment |
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Alexander Graham Bell Association for the Deaf & Hard of Hearing | www.agbell.org |
Helpful to many families is Pizza Moms, an informal information sharing & support group. They meet for supper at 7:30 pm the first Tuesday of every month, at Post Corner Pizza in Darien. Contact Nanette Jordan at nanette618@gmail.com. http://sites.google.com/site/pizzamomssite/
Bookmarked as a favorite website should be Spednet - www.spednet.org. Locally based and regularly updated with meetings and events, it is an excellent resource.
Lastly, please let us know about organizations that have been useful to you, we'd like to include them on this list. Contact yourPTA Special Education school representative, or email us at SpedParents@Westport.k12.ct.us.